2019 LDS AWARENESS WALK & BLOCK PARTY EXTRAVAGANZA

Welcome to our Loeys-Dietz Syndrome fundraising page! On Sunday June 2nd at Taft High School in Chicago, Illinois the Loeys-Dietz Syndrome Foundation (LDSF) Chicagoland group is putting on a Loeys-Dietz Syndrome (LDS) Awareness Walk and Block Party Extravaganza. We invite you to show your support for some of the strongest and bravest warriors we know and to cheer them on as they walk this long hard journey for this amazing cause.

Loeys-Dietz Syndrome is a genetic disorder that affects the connective tissue in the body. Individuals with LDS exhibit a variety of medical features in the cardiovascular, musculoskeletal, skin and gastrointestinal systems. It manifests itself in a number of ways; therefore, no two persons with LDS will have identical medical characteristics. However, Loeys-Dietz Syndrome can cause sudden emergency situations, such as spontaneous collapsed lung, retinal detachment and hollow organ rupture, and in the worst cases, can be fatal, as it is an aggressive aneurysm syndrome that significantly increases the risk for aortic and arterial dissection, or tears in the lining of blood vessels and arteries.

Fortunately, with the help of organizations like the Loeys-Dietz Syndrome Foundation, the management and care of individuals that have been diagnosed with LDS is developing and improving. However, there is much more to do regarding the understanding of LDS, and it is the hope of the Loeys-Dietz Syndrome Foundation that increased education on the disorder will lead to earlier diagnoses, more effective therapies, and improved medical outcomes for individuals with Loeys-Dietz Syndrome.

Your support gives us the tools needed to achieve our goals of implementing research grants to learn more ways to help those afflicted with LDS, educate the medical and lay community to help with proper management, preventative care and informative medical decisions and to build local communities to be a support for each other. Please help us Heal Hearts and Inspire Hope for Tomorrow by making your tax-deductible donation today.  

 
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$750 RAISED

$25,000 GOAL

This Campaign 10 3%
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This campaign has ended.
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