The LDSF Cardiovascular Fund’s dollars will go towards research and education with the goal of gaining knowledge and ways to help those afflicted with LDS live longer and have a higher quality of life.

Loeys-Dietz Syndrome is characterized by a rapidly progressive aortic and peripheral arterial aneurysmal disease. Weaken connective tissue in the cardiovascular system are the cause for cardiovascular surgery in those with LDS at a relatively early age. We are fortunate to have brilliant researchers such as Dr. Hal Dietz at John’s Hopkins Hospital in Baltimore and Dr. Bart Loeys at Antwerp University Hospital in Belgium. Both doctors work in connective tissue labs which are dedicated to learning more about the cardiovascular system with the ultimate goal on preventive care for those with LDS and related connective tissue disorders. Wonderful progress has been made in the short years since the syndrome was discovered in 2005, but we still have a long way to go.

A very generous matching fund for $100,000 has been created by the Willams family. This means that every dollar donated up to $100,000 will be doubled. We thank you for your support of the LDSF Cardiovascular fund and for helping the foundation to reach its mission of research and education. 

$61,586 RAISED

$100,000 GOAL

This Campaign 51 62%
has ended. Believers Funded
This campaign has ended.